Wednesday, March 23, 2005

Cinqo dies de ma Transplanto(My version of Spanish)

This is March 23 2005. That means it is five days since I was infused with someone elses Stem Cells. It will still be a while before anything spectactular comes, I have to wait for the cells to get into my bones and start making my new blood. So far all my counts have dropped, as normal, white blood- 0.2, red -94, platelets- 113. Likely my platelets will drop almost to zero before they will give me any transfusions, as it would mean filling me, again, of someonelse's cells and that may just confuse my already slightly dazed body or blood stream.

Well the few days past I havn't been eating a whole lot, which is nothing compared to my normal eating habits. I just keep getting sick, like I said before, I hate getting sick. So slowly I am waisting away, but I think my eating is starting to pick up again. But now I have to worry about my mouths sores I seem to be getting, they aren't too sore yet, but they are becoming that way. Unfortunately the mouth sores won't disappear until my blood counts come up which could take up to two weeks before engraftment occurs in my bones.

My doctor told me I am on the road to Picadilly today, I am not really sure what that means, but he is a funny African doctor, so he must have some strange saying but he is a good doctor.

So whatever road I am on, its definatley not over yet, but one day at I time, I will get there!
Justin:)

11 Comments:

At March 23, 2005 9:50 PM, Anonymous Anonymous said...

Saludos! Justin, cinco dias despues de tu tranfusion, pareces bien de espiritu. translation: five days after the transfusion you appear to be in good spirit. This is my attempt in spanish. Since your travel with Katimavik you have shown quite the aptitude for learning foreign languages including the language of medicine and the language of music (guitar)and cultures. One day you will travel the world and learn more about your passion for life.
Muchos abrazos (many hugs) Nos vemos pronto! .... :)Ingrid

 
At March 24, 2005 6:44 PM, Anonymous Anonymous said...

I've learned something new today -what a blog is. Your mom emailed me (Cheryl) and told me, so it's not like I didn't need some teaching! All of us - Kaitlin, Bri, Jess, Murray, and me -think of you often and wish you well. Take care.

 
At March 24, 2005 9:01 PM, Anonymous Anonymous said...

Hello Justin,
I just wanted to let you know that we are thinking of you. I don't know but picadilly sounds like somewhere you might go in your dreams if you're are strong pain killers. Know what I mean? Which I doubt if you are. Keep up the mouth care, the sores do go away. If you don't feel like eating I guess there is always "ensure",. to keep up the strength You're doing great Justin, you will get through this. Hugs to you. You will be a "WINNER."
Laurie

 
At March 25, 2005 7:13 PM, Anonymous Anonymous said...

Hi Justin, Happy Easter! Glad to hear your on the road to Picadilly ! Maybe your donor is from London?I was hoping that you wouldn't get the mouth sores. Since you can't eat maybe the Easter Bunny will leave you a raincheck ! Wish you were here, next Easter will be better!!!Give your mom my love and an Easter hug. Say Hi to Jill and everyone for me. Don't rub your eyes,rinse your mouth,wash your hands and get lots of rest! Deseree

 
At March 25, 2005 7:51 PM, Anonymous Anonymous said...

Justin, you are right that some people do not know how to respond or relate to what you are going through. I met you briefly when Jill brought you over and you all disappeared to watch TV. The hairdo or lack thereof was a giveaway. I knew before my daughter told me that you were fighting a disease.

That night was very upsetting for me as a mother. I have to say my heart first went out to your mother and how she and your family was coping. I then wondered next about how you were feeling when you were out meeting new people and if you or they could get past what you were going through and relate as you would have prior to the disease.

My other daughter showed me a note tonight from Jill with a link to your website. I've just been through it and find that you have answered many of the questions I would never have had the courage to ask. It is apparent you have a very good outlook on the whole process and I am very impressed with your ability to share it with others.

I wish I had some of this information previously. A few friends have gone through this, thankfully successfully. (One was not a candidate for a bone marrow transplant due to a rare blood disorder) I can say now I was not as supportive as I could have been in fear of doing or saying the wrong thing. You have taught me alot.

It is heartwarming to read the comments from some of your support group. I will be cheering you on from the sidelines.

 
At March 27, 2005 10:45 AM, Anonymous Anonymous said...

Hello Justin

Seems like you are taking things well. Keep a good sense of humor and keep strong. As far as picadilly is concerned i know of a place in London called the Picadilly Circus, maybe this is what he is talking about. Anyway, we are thinking about and wishing you a speedy recovery, Ryan, Evan and Diane and myself say a big hello. The Dunphy's

 
At April 01, 2005 9:59 AM, Anonymous Anonymous said...

HI, Justin,
I am slow at getting back to you since I came home, all is well here, I continue to pray for you, and I see results of those prayers, the great physician is at work with the doctors. It has been an exercise of faith for many and a stretching time for us all.
But you are going to pull through this, and help many in the future.
Your journal has already been an encouragement to many. Your skills in writing is a gift as you share your story to the world.
Blessings,
Your Aunt

 
At April 02, 2005 7:20 AM, Anonymous Anonymous said...

Hello Justin
I hope you are resting well and on the mend.

My grandson had acute myelogenous leukemia before he was a year old. He was expected to die, but he was fortunate to be able to have received a stem cell transplant. So far he is free of cancer and is now ten years old. He participates in the Walk sponsored by the Cancer Society in Dawson Creek.

I really admire you for sharing your experience with others.


Margo Hannah, Dawson Creek

 
At April 02, 2005 10:16 PM, Anonymous Anonymous said...

Hey Justin
We are all glad to see you that you are keeping in touch and keeping us informed of what is going on with you. We think about you daily and hope that you will be coming home one day soon, healthy and with that great big beautiful smile of yours. You are truelley an inspiration for all. I know that you have probably been told this alot by many who have read you struggles and triumphs, but really it is nothing short of extraordinary. We miss you kiddo and are sending all our happiness and get well thoughts to you. Keep strong the day will come when you will be home again, and we will all celebrate. Lots of love, to you and your mom. She is very strong as well.

Sincerely,
Darren, Renee and the kids

 
At April 03, 2005 8:00 AM, Anonymous Anonymous said...

Hey justin, stick in there we all know you can do this. Remember your the strongest guy I know and we are constaly praying for you. I cant wait to see you in a couple weeks I miss you man. And stay strong. your are our hero...there's know one like you remember your a farm boy lol ha-ha.. hope to hear from yeah soon...

Jeff.

 
At April 05, 2005 10:28 PM, Anonymous Anonymous said...

Hi there Justin...I haven't talked to you in ages but I just wanted to let you know that I'm praying for you so much. I just realized today that you had this blog on here and I think it's great that you're keeping everyone informed. Well hopefully I'll see you soon, I'm thinking of you!!

Alex Foster

 

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