Monday, August 29, 2005

Swycked

It is really hard to believe, on September 8th it will be one year since I stepped out of my house and left the safety and comfort of the place I call home. I miss it. I miss seeing my family, all my friends who were around to just hang. It just shows you how things change, plans are altered, lives are shaken up and drift back to a somewhat norm. Right now my normal is living in Calgary, I might as well call this my home now, really it has been for the past nine months... You think that is enough time for it to be stamped into my brain that this is where I belong, or where I must remain. It feels like a home, yet I am prisoned here against my personal wants to return home for at least a little while. But so life goes on.

The past two weeks I was lucky to spend with a friend who I have known my whole life. It was nice to spend some quality time with her, since we haven't been really close. But living together for two weeks, you get to know someone pretty quick, their annoying habits and common complaints and all the things that make you sick of each other... It was a great time! Seriously. It wasn't so much a change of scenery or pace, but a little different atmosphere, I felt a little more relaxed I guess, I would have been lonely as the permanent residence(aunt and uncle and kids) were gone on vacation.

With my skin reaction, the Graft vs. Host thing, it's very difficult to determine what is happening at the moment. In my opinion I burnt my skin to blistering in Light therapy and thus began to peel harshly, but at the same time I began Cyclosporin again which is supposed to help with the "disease", but my Prednisone remains high. As I shed this layer of skin, I resist going to light therapy, meanwhile, the length of time I spend in the UV ray box will be reduced... Are you getting all this? So as long as the next layer of skin does not begin to itch, become burned, or whatever else can happen, all is well?!

Summer... It's beginning to look like the end of it. Well I know I didn't accomplish much to mention, but I guess one summer of not doing anything really anything is no big deal, maybe it will be my last. Next maybe I'll be working my butt off, but hopefully just going to some tropical island to do nothing... Doubtful.

This Thursday I start my courses at the college, I was excited about it, but now I am feeling a little intimidated. What am I getting myself into! It has been over a year since I did any sort of school work....I'm scared. No I should be fine, and it's only two courses, and ones that I am pretty confident with both. We'll see how they go. Mostly I guess I am doing it for more social interaction, lacking a bit since I have been sick and being away from home for so long, but it's a pretty pricy way of doing it just for that, so I guess I'll have to work too. Meanwhile I continue to see my doctor regularly and we'll see how it goes from there.

Hope I haven't lost too many reader from my lack of publishing, if you're out there Holla Back Now!!

Justin:)

Tuesday, August 16, 2005

Still Here

Now that a whole month has past since my last entry, I figured that it was about time. It's raining right now, and watching the tv deoesn't take much effort so I am multi-tasking.

The past few weeks have seen some changes. My mom went home finally. She needed to get home, look after the other art of the family, get some stuff done at home, quit wasting her summer in Calgary. Of coursespending the time to keep me company is not wasting time, but for lack of a better word, there is a lot more to do when you're at home. This is my home now, I have decided that I might as well just stay here in Calgary. Not knowing how everything is going to turn out (how long I will need to continue with light therapy, how long my high dose of Prednisone will last.) So the plan of not know has moved to staying put and not worrying about when I can ever go home. I consulted with the doctor, and found at I would be alright to venture offto college in September. I won't be enrolling in anything too strenuous. I only applied as a part-time student, and am only allowed to take two credit courses, but as many upgrading courses. I'm still trying to figure out what I will take, but it's looking to either French or Spanish, and Biology. I had almost ruled out doing any courses this fall, but then again I was planning on being home, and thought things would be a little different, but things don't always go the way they were "supposed" to. As we can look back at this past year and tell. But no matter, eventually I will get home. A whole year will have past since I have seen my mom on September 8th. It seems so long, but at the same time it's not a lot of time that has past, just a lot that has happened. Hopefully my skin, which is really the only issue holding me up, will be resolved soon. Unfortunately my skin has flared up again and is back to being itchy, which is a sign that something isn't working right. My prednisone is currently at 70mg, so it could be very well raised up again or remain at this level. I guess the PUVA isn't working as well as it could yet, so we'll see. I am not really sure how fast I will see results. But getting off prednisone would be nice. Over and out for now!!